Glorious Hardship

It is 3:05 am and my child is crying. Loud. I am in that hazy zone of sleep where my body and a vast majority of my mind are still asleep. But there is a piece of my conscious brain that can hear her cries, can visualize that I am going to have to be […]

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Control

“Got my own mind I wanna make my own decisions When it has to do with my life, my life I wanna be the one in control” -Janet Jackson I tripped and fell while holding my daughter this morning. It was as scary as it sounds. Every bit as shocking as I have dreamt for […]

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The Child Inside

This past weekend, I had the joy of working with a group of teenagers from around the country. They were here to participate in a leadership weekend and become the first ever Youth Board for the Charcot-Marie-Tooth Association. CMT is the disability that the youth and I all share. 9 totally different kids. And yet […]

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Walking the Walk

My usual birthday tradition is to reflect upon and then write about what the last year of my life has taught me. I spend the actual birthday solo and introspective, to pay attention to the lessons that sometimes fly past our busy lives. And yet, this year, I did not get the chance to carry […]

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McLovin’

I have always had specific dreams. Maybe it’s the Piscean in me but sometimes I love to dream in detail. One of my longest running dreams was to be married and expecting a baby and my pregnant wife gets a random craving and I delightfully go and make it happen. Just always seemed like it […]

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The Hanukkah Bush

One time in 2008, I was out for a fall walk in my Denver neighborhood. Had my headphones in, my sweater on, and was digging on the changing leaves. When, out of the blue, I had an olfactory rush of pine! It was intoxicating. I instantly followed the scent. Got stronger by the block, and […]

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